Friday, January 14, 2011

Some answers

Today was the big day. Met with the doctor about Reid and find out exactly what was wrong and try to find the right treatment. Earlier in the week, his pediatrician called and told me his test for c diff (the intestinal infection we have been fighting all along) was still positive. So, I knew going into the appt that we were dealing with that. This whole time, i have not been worried about what was wrong. I have felt fine about whatever was about to be thrown at us. We have been dealing with this for 6 months. I am just at the point of finding out what it is, and treating it the best way. The biopsy results came back normal. Everything they tested for was negative, which I expected after seeing the pictures last week and talking to the doctor after the procedure. He said the only thing that is wrong is colitis, which is inflammation of the colon. That results from an infection....the c diff. The reason the c diff never cleared up is because the colitis was working against it. We have figured all along that there was something else going on it was just a matter of finding what it was. So, these two are just feeding off of each other and preventing the other one from clearing up. So, what now? Treat the two together. We will treat the infection with a strong antibiotic and treat the colitis with a medicine that will help in bringing down the inflammation and soothing the colon. Our hopes are that in tackling these two together, they will all together clear up. It will be a long process, several months, but we are hoping for some reaction within a few weeks. I am glad we finally know what it is we are dealing with exactly, instead of guessing and wondering if we are treating the right thing. Reid, still, is un-phased by all of this. He just played with his "neigh"s and "tuuuucks" while the doctor looked at him. Laughed when he was feeling his belly and tried to tell me he was being tickled. I know I have said this before, but we are so blessed that he really is an angel when it comes to all of this. And, with having to take medicine for the next several months, it is a good thing he is good at it! This boy is such a trooper and will grow up to be such a warrior!

Wednesday, January 12, 2011

While we wait....

We find out Friday the results of the biopsy. Until then, Reid has done a good job at keeping me busy and my mind off of the unknown. You would never know just by looking at him that he was sick. This was taken on Sunday in the hallway outside of church. He had just run down the isle laughing and screaming as I chased him in my high heels. He attempted this several times.
Last night he was sick with the stomach flu. So was I. Only difference, I had it for over 36 hours before I even felt like getting up off of the couch. He was playing with his trucks and running around the house 3 minutes after he threw up. It never even phased him.
 Today I heard "MUNNY" coming from the kitchen when I was picking up the playroom. I went in and found this...



I had to fish him out of there 4 times today.
Along with that, today alone I....
found 2 cars shoved in his diaper
picked 2 trains and 3 cars out of the garbage can
had a box of cereal dumped in the sink while I was doing dishes
did a load of dishes with a baseball
fished Chloe's necklace out of the toilet
picked a bunch of clothes out of the water filled tub
had the horse feed dumped out all over the stall and the hay spread all around
folded 6 loads of laundry only to go put away the towels and come back to find the rest on the floor
found 4 acorns in the dryer
put my boots on only to find a motorcycle
(and to those of you that ask, YES I have a constant eye on him. He likes to sneak when he KNOWS I have turned around for a minute. That is why our doors are constantly locked or else I would find him in the barn.)
and that is just what I remember. Not to mention the countless trucks, cars, trains, and balls scattered all over my floor that I am about to go pick up for the 86th time today only to do it all over again in the morning.
And, I wouldn't trade it for anything because all of this mischief that is going on means he is home with us and not in the hospital.

Wednesday, January 05, 2011

quickly

Just wanted to fill in on how Reid did yesterday. He had a colonoscopy scheduled, but they ended up doing an endoscopy as well. The prep for it was rough on him. He had to be on a liquid diet the day before and then the day of, he could not eat or drink anything. He did however have to take a bunch of laxatives and stuff to clear out his system. Poor thing did not understand what was going on and why I wouldnt let him eat. Since his appt wasnt until 2pm, we spent the day running errands, shopping at the mall, playing around in Ikea, anything to keep his mind off of the fact that he was starving. When we finally got to the surgery center, an hour ahead of time as told, they told me his appt wasn't until 3pm! They wrote it down wrong for me. UGH! So, we just waited. They took him back for prep and in the mean time, he fell asleep. So, we curled up with blankets on the gurney and waited for the doctor to show up. Luckily, he was still asleep when it was time for him to go back. I was not worried about the procedure, or results for that matter. What I worried most about was handing him over screaming and imagining him having a mask put on his face crying. Not so. They said he cried a little but just hung on to the nurse as they put him to sleep! When they brought him out he was curled up on the gurney wrapped in his blankie and woke up happy. Drank a whole glass of juice, talked and laughed with the nurse and we went home!
I did get a chance to talk to the doctor. We even got pictures of everything he looked at. He pointed out 3 main areas of concern and told me what it should look like and pointed out what was wrong. So they did 3 biopsies at those sites and that will tell us more about what is happening. He didnt say what they could be, so not to keep us worried. He had told me before what they were looking for so we have an idea. Pathology reports won't be in until next week, so by next friday we will have more answers. Thank you to everyone who has helped through this. We are past the point of being worried, there is no point in it and it just makes things worse. We are just ready to get this boy healthy again!
Maddison and I were talking last week and she asked why all of these bad things keep happening. So, as we talked, we pointed out a few things that were going wrong, but then decided to list all of the GOOD blessings that have come from all of this. And let me tell you, we had a long list of good things. Since that conversation, I have looked at things in a whole new light. I think all of us have. We no longer sit around feeling sad that Reid is sick and wont get better. Instead, we all are happy and point out how happy he is! We count our blessings daily and are so thankful for everything. Worry just drives you nuts and puts you in a bad mood and covers the home with gloom. We are a home full of blessings and we need to remember that!